Dear Jeremy Hunt,
Do you have children, Jeremy, daughters?
Imagine them dying in your arms at 18months old. Imagine seeing them struggle every day. Drs don’t listen “take more tablets” they say. Imagine having all the hope for your daughter dashed because of something that is medically wrong. All those aspirations you have as a parent, gone.
When you have children you want nothing more for them to be happy, to be loved, to be healthy.
I’m not healthy Mr Hunt. I have severe epilepsy. At 27years old I cant be alone. My father sits there every day while I seize. Sometimes stopping breathing. Wetting myself in the most humiliating fashion. Imagine that Mr Hunt, having to clean your 27yr old daughter because she’s messed herself, wet herself, been sick on herself.
The unconditional love of a parent is never ending, however it seems that that’s where unconditional stops.
I’ve been treated terribly by YOUR NHS, a system that was founded to protect and look after the citizens of Great Britain. They haven’t looked after me Mr Hunt. They’ve ignored me, thrown me out of resus, refused me treatment because my condition was (is) so rare. I’m being made to suffer because YOUR Doctors don’t know enough about my deadly seizures.
Do you promise to keep your children safe, Jeremy? It’s a luxury that you’re able to afford I’m sure. Private health-care? Big House? Only the very best. No 14hours waiting on a trolley for you or your family. Unfortunately your reality is only a pipe dream for people like myself. People who have to live day to day with chronic illness, we are the people you are denying safe treatment to when you’re making those Junior Doctors work 42hour shifts.
Mr Hunt, in the past 12 months I’ve been admitted into ICU 31 times. 31times. Am I to trust those Doctors who ship me out every time with a new tablet and a hopeful smile, only to be back in a week? How do I explain to my son that I’m not home to put him to bed? How do I reassure my son that I won’t die, because those Doctors will fix me, right?
As a woman who has paid into ‘the system’, who has a degree and a decent level of intellect I like to think that I will power through. I can’t say that I have faith. In the NHS or you to lead the way. I don’t want my parents, partner of god forbid son to find me dead from a seizure.
Without sounding melodramatic Mr Hunt, I could have a seizure at any moment and not wake up. I have lost all dignity to this disease and all sympathy for you. You and your privileged life.
The NHS you have crippled has denied my home care, I’ve been told to “go into a home” and to give up my much loved child because they simply cant fund my quest for a semi independent life. Would you put your child in a home? It seems incomprehensible, but that is my reality. I’d love to swap if you’re up for it?
Mr Hunt, you have driven the NHS into the ground with your ‘money saving’ plans. You have lead people to suicide, you have lead people into the depths of a hypothetical hell with the choices you so very proudly stand by.
Do people not matter any more? I certainly do when all I’m told by professionals is that “funding cuts are to blame.”
I’m not alone Mr Hunt. There are thousands like me across the country, some far worse. I’m lucky to have my family. I’d be dead without them.
You have crippled an entire section of society. I hope you’re proud.